What is Proton Beam Therapy?
Proton beam therapy is different type of radiotherapy. It uses a high energy beam of protons rather than high energy X-rays to deliver a dose of radiotherapy for patients with cancer.
Which cancers does it work best on?
Some very rare cancers including tumours affecting the base of skull or spine can be treated with high-energy proton therapy.
Proton beam treatment can be a more effective form of therapy because it directs the all important radiation treatment to precisely where it is needed with minimal damage to surrounding tissue. The treatment is therefore particularly suitable to complex childhood cancers.
Background to sending patients overseas
In April 2008 the National Specialised Commissioning Team [NSCT] established a programme to send patients overseas for proton beam therapy. A clinical panel reviews individual cases. If a patient’s consultant feels that proton beam therapy might be a suitable treatment for one of their patients they need to complete the NSCT Proton Therapy Referral form (linked to this page) and submit it to the panel. The panel will then decide whether the case is suitable for proton beam therapy and if so confirm back to the patient’s doctor that a referral overseas can be made [which will then be funded by the NHS]. Further details on the diagnostic categories that have been agreed will be funded as the very highest priority for referral for proton treatment abroad can be found in the Guidance document.
What will the NHS fund?
Treatment will be for a number of weeks, patients and their families may be away from home for 8-10
weeks. The NSCT will fund patient's travel and the costs of accommodation plus some other costs.
More information on exactly what will be funded by the NHS can be found in our policy document (linked to this page).
The NSCT commissions services on behalf of patients in England. For Proton Beam Therapy the NSCT also commissions on behalf of the National Services Division Scotland and, by agreement, for individual patients on behalf of the NHS in Wales and Northern Ireland.
Who organises the patient’s treatment overseas?
The patient's hospital need to support the patient and family if a referral abroad is made. The burden of organisation must not be left to families. The guidance documents set out what needs to be done. If further advice is needed then do please contact the NSCT.
Service Information
The NSCT and the Proton Therapy Clinical Reference Panel aim to continue to expand the programme in future years. Discussions are ongoing about building a PBT unit in England.
Overseas Centres treating UK patients
Service Locations:
When a patient is approved for referral abroad the patient’s consultant will be advised which overseas service the patient should be referred to. The guidance documents linked to this page will explain the programme in detail and provide further information about PBT. If you require any further information please contact the Proton Beam Therapy leads at the NSCT:
Sarah Watson, Senior Commissioning Manager: 020 7932 3953
Julie Partridge, Project Officer, PBT: 020 7932 3937
The Clinical lead for the programme is Dr Adrian Crellin who can be contacted as follows:
Email: leedsth-tr.ProtonNCG@nhs.net
Dr Adrian Crellin,
Consultant Clinical Oncologist,
Chairman NSCT Proton Clinical Reference Panel,
St James' Institute of Oncology,
Level 4 Bexley Wing,
St James''s University Hospital,
Beckett Street,
LEEDS LS9 7TF.
Telephone: 0113 2068602
Fax: 0113 2067561
Below is a list of further information of the service featured on this page. If you require any further information please contact us.
Adult Patient's Information Booklet
Guidance for the Referral of Patients
Abroad for NHS Proton
NSCT Proton Treatment Referral Form
Proton Therapy Clinical Reference Panel
- Terms of Reference
Guidance on the Funding Policy for Travel
and Accommodation - Proton Beam Patients
Treated Overseas
