Neurofibromatosis 1 (NF1) is an inherited genetic disorder, characterised by formation of neurofibromas (tumours involving nerve tissue) in the skin, subcutaneous tissue, cranial nerves and spinal root nerve tissue. With complex NF1 there is a high risk of developing rare complications which may affect most of the body systems.
Complex in NF1 is defined by the presence of other conditions that have the possibility of significance mobility and mortality and require integrated management by a clinician expert in NF1 and a clinician expert in the co-morbid condition.
Review and Assessment of NF1
The national service was designated in 2009/10 in two national centres to review and assess and co-ordinate the care of complex NF1 cases including those with plexiform neuromas and malignant peripheral nerve sheath tumours.
Below is a list of further information of the service featured on this page. If you require any further information please contact us.
